http://apromiseforpaige.com Paige Bourhill Web Site Wed, 30 Sep 2009 18:47:14 +0000 http://backend.userland.com/rss092 en Paige continues to get stronger and stronger!  She has recently begun to pull to stand again and is trying to crawl up the stairs.  She had an EEG the other day at Hackensack Medical Center and her EEG showed so much improvement that they are taking her off one of ... http://apromiseforpaige.com/?p=236 If anyone knows of a trainer who could help us train Paige's dog to assist her with walking, retreiving objects etc, please let us know. Thanks http://apromiseforpaige.com/?p=231 http://www.myfoxny.com/dpp/good_day_ny/090709_Girl_with_Mystery_Illness http://apromiseforpaige.com/?p=229 http://www.eurordis.org/secteur.php3?id_rubrique=1 2009 continues to be a great year for little Paigey!!  She is crawling and pulling to stand better than she ever has and recently has been showing interest in Go Diego Go.  She is extremely alert, and hasn't had a seizure in 6 months!!!  Annette and I are so thankful for ... http://apromiseforpaige.com/?p=226 http://www.youtube.com/watch?v=IUyJrFrWO78 here is a video of Paige using her new walker.  Last year something like this would have been impossible!!! http://apromiseforpaige.com/?p=224 So we just found out the NIH found changes in two of Paige's genes that Annette and I do not have so they are sequencing those genes to see if those changes are the cause of Paige's condition or if they are simply changes that are what makes each of ... http://apromiseforpaige.com/?p=222 2009 continues to be a great year for Paige.  While the next two weeks will see Paige go for her 9th mri and 20th video eeg her progress continues!  She has been crawling all over the house and will head directly towards toys/objects that she wants to play with.  She has ... http://apromiseforpaige.com/?p=219 An article on Paige appeared in today's South Bergenite newspaper, below is the link. http://www.southbergenite.com/NC/0/2378.html http://apromiseforpaige.com/?p=217 http://www.njn.net/newspublicaffairs/healthreports/ http://apromiseforpaige.com/?p=214 This Saturday is the first time Rare Disease Day will be recognized in this country, hopefully in the coming years it will gain more and more media and politicial attention.  While rare diseases only effect under 200,000 people there are over 7,000 such diseases making then not so rare!!!  Annette and Paige will ... http://apromiseforpaige.com/?p=212