Back at the NIH
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We arrived at the NIH on Friday for another week of testing. Paige will undergo a sedated abr, echo cardiogram and abdominal sonogram on Monday. Jake will also have some urine tests. We did receive some new genetic results from Baylor that were ordered by the NIH and all were normal.
Paige’s Benefit
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Paige’s benefit was last Saturday and it was amazing!! We sold over 300 tickets but we estimate that over 400 people showed up. We had a great DJ, a guy who made balloon animals for the kids and the Skel’s rocked in the evening. Annette and I were so touched by the turn out. We could have never pulled off this event without the support of so many local stores.
A Promise for Paige Benefit Dinner
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Paige visits the ER again
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Paige had a difficult weekend, she was screaming and fussy all weekend long so on Sunday, I took her to the ER and it turns out she has an ear infection and sinusitis again!!! So she is back on antibiotics and we expect that in about 2-3 days she will be herself again. We have always found it interesting that Paige seems to do so well on antibiotics…..guess only time will tell.