Some new news……
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So we just found out the NIH found changes in two of Paige’s genes that Annette and I do not have so they are sequencing those genes to see if those changes are the cause of Paige’s condition or if they are simply changes that are what makes each of us different. We of course are hoping for the 2nd!!! We hope to have some additonal information in about a month.
Progress continues….
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2009 continues to be a great year for Paige. While the next two weeks will see Paige go for her 9th mri and 20th video eeg her progress continues! She has been crawling all over the house and will head directly towards toys/objects that she wants to play with. She has been sipping through a straw something she hasn’t done in about a year and she continues to try and grap and hold objects. Just last night we noticed her chewing on a french fry, not the best food in the world but if Paige chews a fry then she can have them all day long.
South Bergenite Article on Paige
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An article on Paige appeared in today’s South Bergenite newspaper, below is the link.