NATIONAL RARE DISEASE DAY
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This Saturday is the first time Rare Disease Day will be recognized in this country, hopefully in the coming years it will gain more and more media and politicial attention. While rare diseases only effect under 200,000 people there are over 7,000 such diseases making then not so rare!!!
Annette and Paige will be attending an event tomorrow in Central Jersey and will share Paige’s story and our search for answers. Unfortunately, i will not be able to attend because i will be having back surgery.
Please remember Paige and the thousands of others who suffer from these mysterious diseases in your prayers this weekend.